Hospices across the country have for years been trying to dispel the “myths” about hospice – that it is only for cancer patients; that it is only for the last few days of life; that it is only for the elderly; that hospice care shortens lives.A recent survey of our community, commissioned by Hospice of Jefferson County and conducted by the Center for Community Studies at Jefferson Community College, demonstrates that clearly the vast majority of Jefferson County residents have a good understanding of what hospice is all about. Over 90% of respondents know that hospice is available to all age groups; 85% know that patients do not die sooner on hospice (in fact, studies have shown that life expectancy increases); 72% understand that hospice is not just for the very final stages of life; and 77% recognize that hospice serves patients with any terminal illness, not just cancer.
The survey questioned respondents regarding areas of importance to them when considering end-of-life care. The preference to spend final days at home was overwhelming – 86% of respondents said that was their choice. Despite that, only 69% of respondents believe that they would be able to receive 24-hour per day support at home if needed. When asked the question, “If your doctor thinks that you have a terminal illness, would you want to know?” over 94% answered in the affirmative.
When asked about their primary concerns about end-of-life care, the two most often cited issues were the cost of care (32%) and the pain that might be experienced (31%). The vast majority of respondents (87%) agreed that it was important to talk to their doctors about the kind of treatment desired at the end-of-life, but only 17% had actually done so. Less than half of respondents have completed advance care directives.
The results of the survey will be used by Hospice of Jefferson County to evaluate the services it offers the community, and its methods for disseminating information about those services. Further information about the survey can be obtained by calling Stephen Lyman at 788-7323, or by email at This e-mail address is being protected from spambots. You need JavaScript enabled to view it .
